Tag Archives: mctd

Feeling better about things..

I thought I would post another update, I am going to try hard to keep up to date on my blog posting. I can't let my daughter show me up! It is school holidays at the moment and I started a new blog for her to give her something to do, and she is taking to it like a duck to water. I have lost count of how many posts she has done! It will be good practice for her writing skills and her typing skills and she seems to really be enjoying it!

I had my 3mthly appointment with my rheumatologist and he agreed to take me off the methotrexate. I feel so much better off it. My pain is slightly worse on it so far (could also be coincidence) but at least now I have a little more energy and can think straight! I am feeling much more hopeful about getting things done and doing more designing. I am glad to not be on such a toxic drug anymore as well.

The kids have been having a wonderful time over the holidays and are only just now starting to be at each others throats. We went to the movies to see Despicable Me in 3d and they LOVED it. They have also been playing with clay and making things out of clay to paint and put on display. Earlier in the holidays they made some sock puppets. They turned out really well and they had lots of fun making them.

I have been feeling quite well over the holidays, I think it is the extra sleep! Sleeping in seems to make a big difference for me and I don't need naps at all when I sleep a bit longer. I need to try harder to go to bed at a decent hour during the school term!

Kyan is growing up so fast and slowly stopping his tantrum throwing. He still throws the occasional tantrum when he is tired, usually over food, but they are fewer and farther between now thank goodness! He is becoming such a delightful and happy little boy and I am so proud of him.

Jasmine is heading fast into growing into a tween. Eeek! It is going way to fast for me, but she has a good head on her shoulders and is very sensible thank goodness. She is still thoroughly enjoying school and continues to get really good marks. I hope she keeps up her love of learning as her school years progress.

Dean is still working hard and I am grateful for how much he does. I can't believe we have been married for 16 years. What a milestone in today's day and age! I wish I could do more to help him around the house but maybe now I am off the methotrexate that will be a little easier.

Anyway, a bit of an update on all of us, it has been such a long time since I have done one of those!

It’s been a while!

It has been a while since I have done an update so I thought it was time to post a blog post on how things are going with us. So much has changed since last time I wrote.

We are nicely settled into our new home. That is we are moved in and comfortable! I still have lots of boxes in the garage that need unpacking that I will do as time permits. Our old house sold fairly quickly after our third contract on it! It sold quick but the first two contracts fell through, but we were third time lucky. Unfortunately the bank wanted more of our equity than we expected so we don't have as much left over as we were hoping.

We were planning on using some of it to buy a new car, since our old one has died.. the engine is kaput and it is still sitting in the back yard. We need to get it to the wreckers but we haven't got to that yet. We got lucky because my brother bought a new one, and didn't need his old one any more and it wasn't worth selling so he let us have it. It will do just fine for the time being especially since….I am no longer working outside the home!!

That's right, if you haven't already heard, I am no longer working as an Admin Manager. After 3yrs in an accounting firm as the admin manager where I did payroll, in house accounts amongst other things, it was time for me to start putting my health first. My health was making it very difficult for me to maintain my work standards and I was finding it harder and harder to manage working full time with set hours.

So what now?? Well since I already have the best job in the world designing for DSP, which I was already doing on the side, I am now doing it full time, well full time with the added benefit of working when I am well and taking it easy when I am not. My hours are as flexible as they can get, I can work at 2am in my jammies, or 9.30am when the kids are at school or 8pm when the kids are in bed, or pretty much any time I feel like it. I love designing and am so lucky to be able to do it as a job now even tho I am unwell. I couldn't have a more suitable job for my illness which at this stage still looks to be Mixed Connective Tissue disease according to my Rheumatologist.

I have symptoms of several Auto-Immune diseases which may later develop into a specific one or may remain overlapping. Auto-immune diseases are notoriously difficult to diagnose even when the symptoms are clear but in the meantime at least I am being treated and now that I am no longer working outside the home, I can put my health first instead of my job but still earn money while doing so! YEAH!

The kids are doing great. Jasmine is about to turn 8 and is such a lovely young lady! She just got her ear's pierced today as an early birthday present. She is starting year 3 this year… boy it goes fast!! Kyan (my baby!!!) is starting prep this year! It will be good to have them in the one place instead of one at school and one at daycare. Although for the first time they have both been enjoying the entire Christmas break at home, and getting to know the kids in our new neighbourhood. I love that I can work even while they are home from school! Although maybe not as efficiently!!!

I think that is pretty much all of it. We had a lovely Christmas and new year and the kids are looking forward to going to school. I am loving spending more time designing although I think it will be easier when the kids are at school! I get so many interruptions at the moment while they are home, which is fine of course, I am enjoying spending so much time with them at the moment.

Oh nearly forgot! Dean has moved the workshop to home now and is now working at home which works well because if he wants to work extra hours, he can do so without feeling like he can't see the kids while he is gone. And now we don't have to waste rent on a shed and can put that money towards our house instead! We still in the process of organising curtains. We have some roman blinds on layby for the family room and have ordered some fabric for the kids rooms and will have them made very soon. Ours will be next after those I think. Yes, we just have sheets on the windows at the moment! It will take time to get it all done but it will happen bit by bit.

We need to get a ride on mower too because we don't have a mower and our block is an acre, so it is a bit expensive to have someone else mow each time! So that is on the priority list as well at the moment.

Anyway, so lots of changes for us, but hopefully all for the better! I think life will be a lot less stressful and much simpler now, and hopefully Dean won't have to work too many extra hours!! How else will he fit all that triathlon training in???