Tag Archives: Auto Immune

The Spoon Theory

I stumbled across The Spoon Theory and it is such a wonderful way to explain dealing with my Auto-Immune issues.  I don’t think mine are QUITE as severe as hers, but fairly close.

So many people don’t get that I am sick because apart from looking pale at times, I don’t really look sick, and it is really hard to explain. I have on countless occasions knocked back a social event because I just wasn’t feeling up to it. I feel at my worst in the mornings after I get up and in the evenings after work and while somewhat better during the day, if I overdo things I pay for it later.

Now most of the time, if I start to feel it I just stop as I know it will only get worse later if I push through it. Sometimes (like at work) I have to do it anyway because it has to get done and I do pay for it later.

Anyway, enough rambling, I thought this was a great way to explain things. Have a read…

The Spoon Theory by by Christine Miserandino www.butyoudontlooksick.com

I feel normal!!

I have been on prednisone for nearly 5 days now and I can’t believe how much better I feel. I almost feel normal again! I got up this morning and one of the first things I did was unpack the dishwasher. It has been a very long time that I have been able to do much of anything in the mornings as I am usually much to tired, stiff and sore. I have been having to have rests while getting ready for work as while standing up ironing, showering and doing makeup makes my back incredibally sore. So much so that I have trouble putting my shoes on. It is now nearly 10.30 and I have put on a load of washing, done some picking up and unpacked the dishwasher and had a shower and my back is only mildly niggly and not an ounce of stiffness. I normally have to put on a wheat pack 3-4 times while getting ready for work, and now is the first time I have done it, and I could easily have done without it.

I feel like I can work through tiredness instead of it feeling like a brick wall of exhaustion that stops me in my tracks. It is NORMAL tiredness, that every other person experiences. I knew I was sick but I am only now starting to realise just how debilitating the illness was.

I am still getting sweating and some swelling, and some mild pain in my smaller joints, but nothing I can’t deal with. Nothing I need painkillers for or can’t work through. If I keep improving at this rate I will be ecstatic.

I haven’t noticed any major adverse side effects yet. No increased hunger, not sure about weight gain as our scales are a bit funny, but my clothes haven’t changed fit wise. I may have a bit of a rounder face, not sure, but that can be a side effect. My mood has most certainly improved but I don’t think it is the side effect of mood swings, I think it is just feeling normal and able to do things ! I guess it is a matter of wait and see for longer term effects but so far so good.