Tag Archives: auto immune health update

Feeling better about things..

I thought I would post another update, I am going to try hard to keep up to date on my blog posting. I can't let my daughter show me up! It is school holidays at the moment and I started a new blog for her to give her something to do, and she is taking to it like a duck to water. I have lost count of how many posts she has done! It will be good practice for her writing skills and her typing skills and she seems to really be enjoying it!

I had my 3mthly appointment with my rheumatologist and he agreed to take me off the methotrexate. I feel so much better off it. My pain is slightly worse on it so far (could also be coincidence) but at least now I have a little more energy and can think straight! I am feeling much more hopeful about getting things done and doing more designing. I am glad to not be on such a toxic drug anymore as well.

The kids have been having a wonderful time over the holidays and are only just now starting to be at each others throats. We went to the movies to see Despicable Me in 3d and they LOVED it. They have also been playing with clay and making things out of clay to paint and put on display. Earlier in the holidays they made some sock puppets. They turned out really well and they had lots of fun making them.

I have been feeling quite well over the holidays, I think it is the extra sleep! Sleeping in seems to make a big difference for me and I don't need naps at all when I sleep a bit longer. I need to try harder to go to bed at a decent hour during the school term!

Kyan is growing up so fast and slowly stopping his tantrum throwing. He still throws the occasional tantrum when he is tired, usually over food, but they are fewer and farther between now thank goodness! He is becoming such a delightful and happy little boy and I am so proud of him.

Jasmine is heading fast into growing into a tween. Eeek! It is going way to fast for me, but she has a good head on her shoulders and is very sensible thank goodness. She is still thoroughly enjoying school and continues to get really good marks. I hope she keeps up her love of learning as her school years progress.

Dean is still working hard and I am grateful for how much he does. I can't believe we have been married for 16 years. What a milestone in today's day and age! I wish I could do more to help him around the house but maybe now I am off the methotrexate that will be a little easier.

Anyway, a bit of an update on all of us, it has been such a long time since I have done one of those!

Update on my Auto Immune Stuff

The side effects of the prednisone are really starting to kick in now, and I am now definately ready to get off it! I had a check up with my gp last week and I have never ever had high blood pressure before, but my blood pressure was high which is apparently a side effect of the prednisone. I have also started putting on weight really quickly which I was hoping I may have avoided, but it has just started happening in the last 2 wks. BUGGER!

My face has been swelling more and more too and the other day I missed a dose and ended up having my neck swell up like a big huge goiter. It looked awful! I have managed to taper my dose by about 2.5mg with minimal side effects, no crash this time like I had when I tried to taper by 12.5mg without the plaquenil.

I think the plaquenil is starting to work a bit now, slowly but surely. When I am feeling unwell I am no longer having the pain I was getting, just the exhaustion and foggy head. I have no idea if this is common for autoimmune diseases apart from Rheumatoid Arthritus but I seem to get worse in humid whether. It explains why I had a flare when we went to see my parents at the coast at Christmas time and in our recent humid weather I haven’t been feeling quite as good as I did initially on the prednisone. I am however still feeling MUCH better overall than I did prior to the prednisone.

The best thing of all is that I am sleeping better at the moment, which I think is an effect of the plaquenil, because the prednisone actually made my insomnia worse, but the insomnia didn’t bother me as much as it did previously. I am actually able to stay awake and even design until 11pm at night which I haven’t been able to do for the longest time! And now, I am able to sleep when I get to bed as well, which is even better!

So right now I am feeling very hopefull that the Plaquenil is the answer for treating this thing which is making me so happy. It is such a relief. Finally a way to manage this thing and actually have a life instead of just live to work and get home and crash every day. At the moment I am trying to decide when to taper my dosage again, I want to do it as quick as possible but I don’t want to risk another flare either. Dean thinks I should take it nice and easy but the prednisone side effects are really doing my head in! Oh well, guess I will take it one day at a time for now and when I feel like I have been ok for long enough drop the dosage again.